I agree. I am also a mother of disabled child (now adult), and have also been shocked at how the current system seems designed to encourage poverty and punitive to people who try to work and accrue assets. I have proposed several policies that I feel will reform SSI & disability so that it better serves the people without increased cost to taxpayers.
Provide a safety net for SSI disability recipients to work - Health - Policies for the People
Provide a safety net for disability recipients to work - Liberty / Justice - Policies for the People