The CDC’s disastrous 2016 recommendations for prescribing opioid medication has resulted in many legitimate, chronic pain, patients, including veterans, suffering, needlessly, and inhumanely! The government is vilified opioid medication as the entire cause of the opioid epidemic. Although there’s been a drastic reduction and the amount of prescriptions written and filled, the overdose death rate continues to skyrocket. Why? Illicit use, including fentanyl. Please stop punishing chronic pain patients and help restore the relationship between the pain management physician and the patient, without fear of the DEA.
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The CDC and the DEA need to get out of Chronic Pain Patients, Cancer Patients and all others suffering from incurable painful conditions lives. It truly has been nothing but a total disaster and has wreaked havoc on the lives of law abiding citizens who rely on pain medications for a quality of life. Punish the real villains - those who continue to bring illicit fentanyl into our country!
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I am a retired RN and now counselor. My children and I have Ehlers-Danlos Syndrome which, among other things, causes daily pain. As has been stated the CDC’s 2016 opioid guidelines have been disastrous for legitimate chronic pain sufferers. Many medical professional advocates of chronic pain sufferers agree. https://www.youtube.com/watch?v=j3k0_Wa36k0. The true opioid epidemic is street Fentanyl. Most medical practitioners, in fear of the DEA, have severely reduced or eliminated prescriptions of opioids. This has resulted in chronic pain patients not being about to work anymore, has significantly affected their daily living, and many have even committed suicide. Again, we are talking about legitimate pain issues, people with fibromyalgia, severe arthritis, spinal degeneration and injury, endometriosis, ankylosing spondylitis, trigeminal neuralgia, Ehlers-Danlos Syndrome, and much more. Please mandate that the CDC correct their errors and require that all medical professionals are made aware of these changes and must treat chronic pain patients appropriately. Get the DEA off their backs.
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I’m new here and also suffer from EDS. I recommend looking for a palliative care provider. They can be very helpful and I’m sure you’re already aware of this option. I know it’s difficult to find a provider in some areas but there are some independent providers who provide palliative care if you call around. It’s still difficult as we age and our bodies get worse and worse. Best of luck to you and your children.
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Yes, I am trying to find a palliative care program to get into. My disease has gotten so severe and I have zero quality of life. It’s especially tough to find a palliative care place that will service my area. 
I have chronic pancreatitis and also have hEDS symptoms but it’s never been diagnosed. Doctors have been so terrible to me. I don’t trust any of them, and there are very few I like. They have been brainwashed by the DEA and CDC starting in medical school. It sucks. I hope you have found a palliative care center that will care for you!
I have a palliative care specialist who is trying to help me but I sometimes have trouble believing that I can be helped.
I think you should consider looking into palliative care specialists who are not associated with any program. That’s how I found my current specialist when I needed one quickly. You might want to just mention the chronic pancreatitis if you don’t have an hEDS diagnosis yet. You can discuss that part if/when they meet with you.
But call everyone and everyplace you can find in your area that specializes in palliative care. Advocate for yourself even when you’re feeling like it is not going to result in anyone taking your case. You never know when someone will. Best of luck. I know it’s difficult but please don’t give up on getting the help you deserve. Don’t give up on yourself!