Thank you so much for bringing awareness to this issue. For those of us with legitimate pain and as complaint patients who submit to drug tests, use a single pharmacy, only get pain through one provider. there should be no other hoops to jump through. I am able to work 40 hours and have a productive life because I use my medication as prescribed. Without it, i would simply not be able to work or get around on my own. I love having my independence.
God help us. Spinal stenosis patient with scoliosis and arthritis. I worked hard for 40 years, , I paid my taxes, I’m a human being and I need help getting pain medication… Animals are treated with more compassion
I have ankylosing spondylitis, degenerative disc disease, bertolottis syndrome, scoliosis, inflamatory bowel disease and a connective tissue disease. I am constantly in pain 24/7. But im told to just take tylenol because they cant give me pain meds knowing ill never get off them. I have to go to the ER and spend thousands of dollars when i absolutely cannot take it anymore. Just to get morphine that lasts maybe 2 hours and is too much so im high off my ass, not able to function. Prior to the pain medication laws changing, i was able to work full time, and live a decently happy life. Not addicted to the pain meds i was prescribed. Then all of a sudden they took them away and ive been struggling ever since. I cant hold a job. Im at the doctor every week. ER at least once a month. Its ridiculous.
Inadequate pain management equates to murder for people with physical injury, surgical care, chronic disease, palliative care requirements. Withholding pain medication that is effective is equivalent to torture and should be illegal.
There is great help on the horizon! Frequency healing is a non-invasive way to wake up your cells to heal themselves! This is the basis for the “med beds” you may have heard about. This technology is rolling out now for everyone. Hang in there as help is on the way!
I am a pain patient and I have to have my nerves burn or have the injections that don’t work I feel the injections and nerve burning dose more damage to the nerves I know in other countries it’s a big no for ppl to get these injections so why can’t it be a big no right here in the USA but if you do not do this you can not stay in your pain management from what I have read and to my understanding the FDA has not even approved this .to me this just puts more money in the pain doctors pockets don’t get me wrong I love my pain Dr but why keep getting the injections and the nerve burning if it really does not work or has not even been approved.
I am a chronic pain patient with multiple diagnoses that cause pain. The CDC guidelines need to be abolished and the DOJ and DEA need to quit acting like they have a medical degree and know what a person with chronic debilitating pain goes through. We are not the same folks who take drugs to get high. I myself don’t like that I need opioid medication so that I can perform simple daily living activities. I don’t get “high”. I just helps me to be able to take a shower or make dinner or sleep. I used to be treated appropriately before 2016 when the CDC Guidelines for prescribing opioids for chronic pain came out. Now there are no Doctors who will treat a patient using opioids, I was forced tapered by 60%, and every month it is a stresser and hassle trying to get the little medication I have been prescribed. It is bad enough having pain to deal with but the government has made it impossible. Please remove yourselves. Your involvement has not only made it impossible for chronic pain patients but the overdose deaths have mostly risen by 900%.
Nothing replaces gold standard opiates for pain treatment. What you are describing is just more quackery. There are zero studies to prove this “modality” is even helpful for pain. This is not what chronic pain patients need. Patients in pain of all types deserve proven over millennia gold standard opiate based pain meds, not to be condemned as addicts when they are not. Many people take drugs for life, insulin, bp meds, endocrine meds, etc… Pain patient addiction rates are well below 1%; more people die from obesity, alcohol, tobacco & swimming pools per year, yet no one is suggesting abolishing any of those things. Addiction is a disorder of choice. I can’t choose to quit my EDS, CVS, RA or CRPS.
I have been crippled in life by this. I had a anterior cervical disc fusion in April of 2020. From doctors pushing my surgery off for four years my disc was so far in my spinal cord. I now have myelomalacia. The spasms and loss of limb use is crippling. I have been begging doctors something has gotten worse since 2021. After years my surgeon listened and I now have two hemangioblastomas on my spinal cord. Wednesday I have surgery to remove these. My neurologist mocked me that my pain couldn’t be from my neck. The point of pain where I wished to die everyday. I was allowed gabapentin. Even seeing I have spinal cord edema in six levels now I am being mocked and told try bupenorphine. My life is forever changed from doctors not listening or doing there job. I am treated as a drug addict. These 2016 rules have every doctor so scared. If i wanted to go to we I am not dying so why am I there. They also punish you at the pain clinic. I have had nerve burns. I am not here for a high but to be able to move. These rules have ruined my mental health. We deserve to live life not in so much pain. I have showed videos of spasms that are uncontrollable. I pray this changes because we’re not here to do illegal things but are treated awful. My grandma who is 84 just had a breast removed from surgery and the Mayo Clinic gave zero opioids. Told her take Tylenol and ibuprofen which she can’t because of her kidneys and liver. Please help change this.
I have multiple spine issues at multiple levels. I’ve been under Pain Management for several years. I’ve undergone surgery, physical therapies, chiropractic care, acupuncture, spinal steroid injections and any other suggestions in order to help and to control pain. But what works best is a combination of pain medication, acupuncture and chiropractic care. It has allowed me to participate in life. Otherwise I’m on heating pads and ice packs in order to simply bring the pain to a tolerable level. I know additional surgeries are in the future as there is no cure, and each surgery gives no promise of less pain. I’ve never failed a urine test or a drug count and have complied with my doctors orders. Ever since the CDC’s recommendations in 2016 things have drastically changed. If one is fortunate enough to have a Dr. not afraid to prescribe pain medication, you find your pharmacy doesn’t have your medication in stock, and you go days to weeks without, or you are treated like a criminal by pharmacy staff when simply inquiring. And if not by the pharmacy, you hit roadblocks with your insurance company who steps in questioning your Dr.’s choice in treating you, then make you jump through hoops to get approval by them, who have never seen you.
So many claim those on long term pain management are addicts. No, addicts take drugs to escape their lives. We in pain management take medication so that we can be an active part of our lives. For me pain management makes the difference of being able to attend my grandchild’s volleyball game, or dance recittal or to be able to go visit friends. In conclusion, taking pain medication for chronic pain is no different than someone who needs blood pressure medication or heart medication. The medication helps control a chronic condition. We shouldn’t be treated any differently. Please, let’s change this so no others end up ending their lives after abandonment by DRs too afraid to actually treat them.
I am with you the injections or the nerve burning doesn’t work if I get my nerves burn I get maybe a month of where the pain is to where I might be able to do things around my home I am so tired of doing the injections and the nerve burning I have been getting this done since 2012 I don’t take my pain meds to get high I take them so I can manage this pain to do everything things in life I pray that we can get back to where the CDC and who ever else is making the rules stop and let ppl like us that live in pain everyday get the treatment we need without th injections and nerve burning Mrs Ruth I pray for you
Sorry you were put through medical torture. We have to unite and know it’s them winning off of our suffering, anytime a person speaks out against opioids,not bc they care but bc they’re paid to. We must me allies in order for us to fight against the most powerful corrupt,gang in America the government.
We are chronic pain patients and we’re suffering. We’re scared every time we go to our PM Dr. People like us are being treated like criminals and drug addicts. It’s so frustrating. I pray for all of you that are suffering.
I don’t know if you saw the other policy just like this 1 but it has almost 1,800 votes. Maybe there’s a way to combine the 2 so we have it all in together with more votes. I will give you the link below.
I wanted to let you know there are 2 of these exact reforms for pain patients. The other has almost 1800 votes. Maybe there’s a way to combine the 2 or vote on the other 1? The link is
with you the injections or the nerve burning doesn’t work if I get my nerves burn I get maybe a month of where the pain is to where I might be able to do things around my home I am so tired of doing the injections and the nerve burning I have been getting this done since 2012 I don’t take my pain meds to get high I take them so I can manage this pain to do everything things in life I pray that we can get back to where the CDC and who ever else is making the rules stop and let ppl like us that live in pain everyday get the treatment we need without th injections and nerve burning Mrs Ruth I pray for you