EVERYONE please share this and encourage friends and family to write a little something about you after they vote. Please include simple directions so they’ll be more inclined to register and vote 
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We - medicine, and people - should have some more looks at “incurable” diseases. and keep looking for cures.
many a thing that conventional medicine csn’t cure, can find relief, or even complete healing, by other methods.
it’s not always possible, but we should never stop looking
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In the meantime, while waiting for a cure for Multiple Sclerosis, a painful progressive debilitating disease-we should have access to opioids that take the edge off pain and keep us minimally functional.
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Please consider voting for my proposal to ban the pharma industry from unnecessarily adding lactose to medications:
Ban unnecessary use of lactose in medications
If successful, this proposal will be a game-changer for millions of Americans suffering from lactose intolerance.
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Anyone disagreeing with this proposal should then explain how o.d. deaths have tripled while Rx for pain have been cut by over half. Resist the cognitive dissonance!
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I voted for, however I really REALLY would feel so much better if the petition instead called for immediate removal & BAN of the worthless, useless, dangerous, wildly inaccurate, outrageously error prone, discriminatory, etc. Narxcare.
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Pls tell us all where this magic 
comes from oh wise 1. If there were better txs, dont u think we’d all be running to b 1st in line? I would. WE HAVE. Also, I personally dont sit around waiting for my next rx. I prefer to spend my time outdoors but this burning 24/7 in my leg keeps me mostly indoors. I cant even move to my children out of state, im a prisoner of my diseases & the state in which I reside. According to my oncologist, rheumatologist, neurologist, theirs nothing new coming any time soon. Chemo, immnunologics, DMARDS, implantable devices that cause more harm & pain. Just a hard NO to this gobbledygook.
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No, I am sorry, my point was simply you are under what they put forth as a “soft limit”. I was actually on your side - being under-treated has made it more difficult for me to communicate effectively. My mind wonders and sometimes I do not explain enough…
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Thank you. I wish the voices were louder. I feel so sad for anyone suffering. Leave chronic pain patients alone and their doctors!
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“If you take opioids and your life gets worse…you’re a drug addict.
If you take opioids and your life gets better…you’re a pain patient!”
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Every ones life gets better in the moment opioids start to have effect.
it only gets worse if it’s a hassle, or downright illegal, to get the drug.
I’m old enough to have witnessed the heroin addicts in the 1980ies - criminality, zombie like people, used syringes on playgrounds, misery, dirt… it was bad. and how fast the situation turned when prevention and decriminalization and medical help was established - it got good basically from one day to the next. children could use playgrounds again.
Addicts are just people who self medicate.
the pain is always here.
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Addicts are trying to cover up emotional pain. Opioids won’t help them do that. They need the CORRECT medication and mental health assistance.
I have verifiable physical damage to my body. No amount of talk therapy and antidepressants are going to heal that damage.
Opioids for me turn the pain down (not off) so I can do every day tasks (shower, cooking, dressing) without wanting to scream from the pain I’m in.
For addicts, they will keep taking more and more of the wrong medication because it is not helping them.
I will take the amount prescribed to me by my doctor who monitors my reactions.
Since the 2016 CDC guidelines came out, the government (CDC, DEA, FDA, etc.) has decided both me and the addict are considered the same patient with the same needs. This is not true. Opioids help me lead a more productive life. Opioids make the addicts life worse, leaving him unproductive and unable to face reality.
Taking my medication from me helps no one. Now, we all just suffer. We need to understand pain patients are not addicts and act accordingly.
Thank you for being willing to discuss this important difference. Most people won’t.
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I’m with the CDC here.
it’s more or less luck, if the medication that suits you is legal, or not.
and of course heroin et al. are effective. many take the same dose over a long time, years and decades. and are productive and reasonably happy with it.
that they can’t get their medication prescribed and supervised by a doctor, is an artefact of rather random legislation. there’s no real reason for it.
All substances should be regulated, but accessible in decent quality.
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I am a pain patient. I beg you to stop vilifieing pain management and the drs who try to help us with the limited options available. I barely get by with what is prescribed to me. I live 85 - 90% of my life in the bed, due to limited amounts and options of pain meds. When i go out to the store I’m in the bed for a minimun of 2-3 days suffering on pain meds afterwards. All the meds do is make it where I’m not out of my head crazy in pain. I personally am in pain 7/24. Just different levels. I used to get long acting meds and breakthrough meds for extreme pain. Now i live on the breakthrough meds only due to the laws. Im begging you PLEASE help us. This is no way to live struggling, no quality of life and being judged by other Healthcare providers due to the stigma.
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Buprenorphine is a new drug and still making money from it’s patent. I was on the patch and felt like the oxycodone wasn’t working as well. I found out through my pharmacist that both of the drugs take up the same space on the receptor so they kind of half way cancel each other out. I decided I didn’t want to pay $100 a month for a drug that would reduce my oxycodone. Then, if we call around to try to find a doctor who would prescribe this gold standard medication, we are accused of Doctor shopping. I was in the middle of the Hurricane Helene disaster in September. My PM did not have the required disaster plan in place and I was due to fill two days after it hit us. I didn’t have time to titrate down. I had to go to 3 different pharmacies to get 3/4 of the amount needed for 4 days until my telehealth. The Doctor office called me back and said they weren’t going to do telehealth; that if I wanted my meds, I’d have to drive 1.5 hours south through a disaster zone to his office in another state. I pointed out that at 68 and with a body that cramps up badly if I’m in a car too long, not to mention the freaking anxiety of driving into I knew not what! He didn’t care so I painfully made the drive. He told me that the reason I had to come in was because I was reported for Pharmacy shopping! I was gobsmacked! This was madness. I instantly lost my fear of making him angry and told him the only one breaking the rules was him for not having a “required for DEA license” disaster plan. If he had the plan, I wouldn’t have had to go to 3 pharmacies. When my PCP heard what he had done and said, she personally called him. Asked him what was going on? It ended beautifully with her taking over my care. We just have to learn more frank ways of interacting with our doctors so they don’t gaslight us.
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I’ve been treated like a drug seeker and it’s horrible I have also had in my body more than 18 surgeries and I’m in so much pain that is unbearable sometimes I just wonder how can I get treated like that I’m a person with feelings and it’s a shame that doctors won’t understand us a patient with pain every day most doctors don’t want to deal with the harassment of the DEA and they just give us injections that don’t work or medication that is not helping us with different types of conditions some doctors just tell me to go to the ER for my pain and that’s even worse because they treat you like you are just making it up to get pain medicine and I have my legs and arms completely swollen and crying of pain and they just tell me to go to a pain clinic and I’ve tried 4 already and they won’t accept me because my case is too complicated I just want to be treated like a normal human that is dealing with different sickness and to be respected
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Thank you so much. This is professionally written and to the point. Keep fighting! Times are changing. Huge gentle hugs to you all.
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It’s terrible (read “criminal”) that these folks are unaware of the healing capabilities of Traditional Chinese Medicine.
After a few months of opioids, why would one even care that there might be a solution, as the will is weakened to do much else but survive- if that.
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No source material? Does this include the readily available fentanyl?
